Fetal Alcohol Spectrum Disorder – Community Education Non-Credit Course

The School of Human Services within the Faculty of Education and Social Work would like to recognize the Victoria Foundation for entrusting us with the delivery of this course and content. The Foundation fully funds this training and enables individuals from across our province to learn and grow in their knowledge of FASD and work to support individuals living with FASD.

About

The Online Fetal Alcohol Spectrum Disorder (FASD) Training consists of eight modules that are self-paced, self-directed and covers a range of topics from Fundamentals of FASD, Family Matters to FASD Across the Lifespan. The course is open for approximately 12 weeks, and you are welcome to print off notes at the end for your records. The information is designed for front line workers, families and self-advocates. This training has previously been offered through Douglas College. Thompson Rivers University is pleased to be able to facilitate the learning and we hope it continues to be well received by professionals and families. A certificate of participation is available at the end of your studies.

General introduction

This set of modules are founded on the following key beliefs:

Each person with FASD is just that — a person first, who has some unique gifts, strength and experiences. We believe that "My disability is what I have and not who I am." FASD does not define a person; it is simply a part of them. When you have seen one person with FASD, you’ve seen one person with FASD.

There is no one size fits all nor a cookie cutter approach when it comes to children and adults with FASD. Therefore, suggestions and ideas presented in this course need to be tailored and modified to help with each individual. FASD presents very differently with each person and so it is application of principles based on knowledge of the person and this brain-based disability that lends to success.

FASD is a community issue and not exclusively a women’s issue. Women drink because of many different and complex reasons. FASD is disability that crosses all races, cultures and socio-economic conditions. If we can offer support, without judgement, to women who are planning a pregnancy or are already pregnant, to reduce or eliminate their use of alcohol, then we can help lower the rate of children born with FASD.

Module 1: FASD Fundamentals

This module is 1 of 8 modules about Fetal Alcohol Spectrum Disorder (FASD). In this module you will be introduced to key concepts and definitions relating to FASD.

Objectives

By the end of this module, you will be able to:

  • Examine the basics of FASD including: terminology, diagnosis, assessment and basic facts.
  • Further your understanding of the role of brain development and FASD.

Module 2: Primary and Secondary Disabilities

This module is 2 of 8 modules about Fetal Alcohol Spectrum Disorder (FASD). This module provides an introduction and overview of the primary and secondary disabilities commonly associated with FASD. Secondary disabilities are sometimes referred to as life complications. Primary and secondary disabilities can also be thought of as another way to refer to the signs and symptoms of FASD.

Objectives

The module begins with an overview of basic facts about FASD and an explanation of the scope of the condition. You will examine the role of prenatal alcohol exposure in fetal development and finally, you will be presented with an overview of primary and secondary disabilities.

By the end of this module, you will be able to:

  • Explain the differences between primary and secondary disabilities.
  • Discuss preventions and protective factors for both.

Module 3: Sensory Processing – It’s a different world

This module is 3 of 8 modules about Fetal Alcohol Spectrum Disorder (FASD). In this module you will be introduced to the basics of sensory processing and how sensory differences influence the lived experience of children, youth and adults with FASD. Understanding and learning how to work with sensory differences can help individuals with FASD and those that support them be successful and avoid adverse experience along their life journey.

Objectives

By the end of this module, you will be able to:

  • Understand the various components of the sensory processing system.
  • Recognize that individuals with FASD may experience the world differently because their sensory processing system is different.
  • Understand the challenges that individuals with FASD face dealing with a world which they experience very differently.
  • Understand some of the adaptations that can be effective for specific sensory processing issues.
  • Learn about resources and resource people who can be helpful in dealing with sensory processing issues i.e., developing circles of support.
  • Develop some strategies for advocating for the necessary accommodation for individuals with sensory processing issues.
  • Begin to discuss how to build resiliency and facilitate interdependence through the development of self-advocacy skills.
  • Understand that we may not be able to change the sensory processing system of the individual, but we can change the environment, making life less challenging.

Module 4: Strategies and Solutions

This module is 4 of 8 modules about Fetal Alcohol Spectrum Disorder (FASD). The purpose of this unit on strategies is to encourage you to see behaviour from a brain-based disability which requires you to experience a paradigm shift. Throughout this module you will be presented with strategies which will be delivered from a place of empathy, compassion, understanding and firm but gentle coaching.

Objectives

By the end of this module, you will be able to:

  • Identify effective strategies and support plans that focus on a strengths-based, cross sectorial, multi-disciplinary approach.
  • Understand how to apply practical, skills-based support strategies to address the brain-based disability aspects of FASD.

Module 5: Family Matters

This module is 5 of 8 modules about Fetal Alcohol Spectrum Disorder (FASD). This module has been designed for parents and caregivers of individuals with Fetal Alcohol Spectrum Disorder (FASD). The ideas and materials presented here, may also be helpful for those living with a spouse or parent with FASD.

Objectives

The module begins with an overview of basic facts about FASD and an explanation of the scope of the condition. You will examine the role of prenatal alcohol exposure in fetal development and finally, you will be presented with an overview of primary and secondary disabilities.

By the end of this module, you will be able to:

  • Examine some of the features that make FASD a unique disability and the implications that arise in caregiving.
  • Learn about coping strategies so that one is equipped to parent individuals with FASD over the long term: "Running the marathon and doing whatever it takes" — Consider common issues regarding grief and loss.
  • Consider common issues regarding grief and loss.
  • Learn about the importance of finding ways to get care for the caregiver.

Module 6: Building Supports

This module is 6 of 8 modules about Fetal Alcohol Spectrum Disorder (FASD). This module will provide an introduction to the variety of support systems individuals with a diagnosis of FASD can benefit from throughout their lifespan.

Objectives

By the end of this module, you will be able to:

  • Gain an understanding of the importance of developing a circle of support around an individual with FASD throughout his/her lifespan.
  • Be able to identify key areas in which support may be required.
  • Be able to identify principles underlying the provision of support to strengthen positive interdependence of the individual with FASD.
  • Be able to identify the steps in developing a support system.

Module 7: Living and Learning – FASD First hand

This module is 7 of 8 modules about Fetal Alcohol Spectrum Disorder (FASD). It has been designed especially for those people who think they may have Fetal Alcohol Spectrum Disorder or have had a diagnosis of FASD. It has been written by Marsha Wilson, a college instructor and mother of an adult son with FASD and Myles Himmelreich, an international motivational speaker and author. Myles himself has FASD and is indeed an expert.

We wanted to write this module to give information to a wide audience, including those living or suspected of living with FASD. We also want to help those who learn differently or have been diagnosed with FASD understand a bit more about what it may be like for you to live and learn with FASD. We thought it would be best if one of the writers actually has FASD and could talk about his experiences in a way that could be helpful. We have also included examples from other people too. Both of us have tried to write this module in plain language so that it is easy to understand.

You may find it helpful to read and work through this module with someone you know very well and trust. You may call this individual a support person or support worker. We often call this person a go-to person; they are someone that you can go to if you need help and they understand and care about you. Myles came up with the title! ‘First hand’ is an expression that relates to have having a real-life experience with something.

We hope you like this module that has been written by people (Myles and Marsha) who have real-life experiences, as mother, as teachers and friends of many who also have first hand experience with FASD.

Objectives

By the end of this module, you will be able to:

  • Understand the effects of FASD relating to physical, mental health and behaviour.
  • Examine the role of Interdependence and relationships as supports.
  • Further your understanding FASD in adulthood and its bearing on volunteering, paid work and positive uses of time.

Module 8: Working with Families and Individuals with FASD

This module is 8 of 8 modules about Fetal Alcohol Spectrum Disorder (FASD). This module has been designed with a focus on developing helping relationships and provide some tools you can use to assist you in helping your clients or loved ones with FASD.

Objectives

By the end of this module, you will be able to:

  • Describe the complexity of FASD and difference between FASD and other disabilities.
  • Describe the applications of the principles of family centered care to one’s professional practice.
  • Identify key components of effective collaboration Identify key strategies that identify and address challenging or complex situations that may arise when providing support to families.
  • Explain the importance of developing a collaborative helping relationship with families of individuals with FASD.
  • Develop a self-care plan.

Thoughts to Ponder Through this Module

In this module we will explore some of the possible stories from individuals with FASD and their family members, and then ask to hear your story.

The key to working with others in a helping capacity is developing a relationship with the person or people you are working with. That relationship develops with understanding and knowledge of the other person. When working with individuals with FASD and their families, it is important to listen to their story. Each person has their own unique story or truth. If you want to work effectively with them, it is helpful to hear their story and to recognize your own story. How did you get here?

Course facilitators

  • Marsha Wilson

    Marsha Wilson, MA, TESL

    » Marsha's Bio

    Marsha began her career as an infant development consultant in Ontario, where she began her journey in supporting families caring for complex children. Marsha has a master’s degree in leadership and special education and did her thesis on the design and implementation of support groups for families living with FASD. She recently retired from Douglas College, where she was an instructor in disability and community studies for 30 years. Marsha has taught courses on supporting families and individuals with disabilities. She has helped to educate many students who are now front-line practitioners as educational assistants, behaviour interventionists and community support workers.

    Marsha has co-authored curriculum on support groups for FASD and was the driving force and creator of a provincial resource, the FASD Online Training Program, a collaborative project between the Victoria Foundation and Douglas College. As the project lead, Marsha and her team designed, developed and delivered an eight-module online program that included annual face to face workshops with agency staff and families throughout the province.

    A long-time volunteer in various roles, Marsha was an active member of the FASD Collaboration Roundtable for over 10 years, and this is where she and Elizabeth first connected. Marsha is a member of the CANFASD Parent Advisory Committee, supporting and collaborating with other family members and loved ones who have prenatal alcohol exposure. She also assists with facilitating the CanFASD Adults Self Advocate Committee and volunteers at a local social enterprise which assists individuals who are in addiction recovery. Marsha can also be found donating her time and energy at her church, whether in children’s camps and youth groups.

    Marsha is married to Steve and together they are parents to three adult children, one of whom has disabilities. She is also dedicated to supporting her youngest brother who lives with disabilities. A proud ‘grammie,’ Marsha can often be found playing with her grandchildren. Marsha is a traveler and a music lover and is always happy to share her stories of festivals and concerts visited.

  • Jay Goddard

    Jay Goddard, BA, MEd (he/him)

    » Jay's Bio

    Jay has an extensive practice background in counselling, special education and community social service and has worked with individuals, families and communities in a variety of helping capacities throughout BC. Jay has worked in outdoor milieus, supported students with disabilities in classrooms and communities, provided counselling to at risk youth, worked in community development supporting prosocial programming for children and youth as well as support for individuals with FASD. Jay is an applied theater practitioner as the founding co-conductor of Feet First Playback Theatre which works towards creating shared narratives and dialogue around the impacts of change on people and communities. Jay is a relational experiential educator and facilitator who values the importance of interpersonal connection and both trauma-informed and anti-ableist lenses in education and practice. His current research and teaching interests include nature-based human service practice, applied theatre (playback and theatre of the oppressed), social discourse on disabilities and neurodiversity, universal design for learning, fetal alcohol syndrome (FASD), parents and families of children with special learning needs and community development. Jay has taught at Cariboo College/UCC and TRU since 1990 and worked in private practice from 1999 – 2018 providing counselling to individuals couples and families. Jay continues to pursue his passion for the performing arts and spends his time away from TRU acting, making music and occasionally directing local community theatre. Jay Is the parent of two neurodivergent children.

  • Michele Bebault

    Michele Bebault, BA, BEd, MA

    » Michele's Bio

    Michele has worked as an educator in a variety of capacities for over 30 years. She has her Bachelor of Education and Master of Arts in Educational Leadership and Special Education.

    Michele worked, for 27 years, in schools with students who have disabilities ranging in age from Kindergarten to Adult. She has been an Integration Support teacher, Itinerant Learning Support teacher and an Autism Resource teacher. Michele values hands on learning and looks for every opportunity to incorporate practical, real-life learning and experiences into her teaching.

    For the past four years, Michele has been a faculty member of the Thompson Rivers University Human Services program in Williams Lake. She is passionate about sharing her knowledge, learning and experience with students new to the field of disability awareness and support.

Registration

Course name: XFAS 1100
Course Title: Online Fetal Alcohol Spectrum Disorder (FASD) Training